NAF sites
- NAF site: https://ataxia.org
- NAF webinars: https://ataxia.org/webinars/
- Ask the Expert: https://www.ataxia.org/asktheexpert/
- About the AAC: https://www.ataxia.org/annual-ataxia-conference/
- National Ataxia Foundation: Seated Adapted Tai Chi Session:
https://www.youtube.com/watch?v=H464VHjPpwc - NAF store: https://littlepepperpromotions.commonsku.com/shop/d807b33d-fbe7-4776-afec-8ade75022763/shop
Massachusetts Sites
- MassMATCH (MA initiative to Maximize Assistive Technology (AT) in Consumer’s Hands): https://www.massmatch.org/index.php
- Mass Independent Living Programs: https://masilc.org/cils/
- Finding Your Way Around Organizations Serving the MA Disability Community: https://www.mass.gov/info-details/finding-your-way-around-organizations-serving-the-disability-community
- The Ataxia Unit at MGH: https://www.massgeneral.org/neurology/treatments-and-services/ataxia-unit
- MOD: https://www.mass.gov/orgs/massachusetts-office-on-disability
- New England ADA: https://www.newenglandada.org
- In-home services: https://www.mass.gov/in-home-services
- searchable database of transportation options in Massachusetts: https://massridematch.org
- Home Modification Loan program for Mass residents: https://www.mass.gov/home-modification-loan-program-hmlp
Local Sites
- Millennium Park in Newton, MA that Vincent mentioned: https://newtonconservators.org/property/millennium-park/
- Mason’s Hospital Equipment Loan Program (HELP): https://smd-help.org/
- The site Nancy mentioned about borrowing a beach wheelchair: https://smilemass.org
- DCR Beach wheelchair locations: https://www.mass.gov/doc/dcr-beach-wheelchair-locations/download
General info for people with disabilities
- Accessible Trails: https://www.traillink.com/activity/wheelchair-accessible-trails/
- Abilities Marketplace: https://www.abilities.com/community/opportunity-zone.html
- Day Undefined (Everyday products for accessible living): https://dayundefined.com
Exercise/Sports Sites
- Spaulding rehab: https://spauldingrehab.org
- Northeast Passage: https://www.nepassage.org
- Parkinson’s Fitness organization: https://parkinsonsfitness.org
- Access Sport America: https://goaccess.org
- Johns Hopkins Educational Series: Physical Therapy Exercises:
https://www.youtube.com/watch?v=BMhxywDhhrw - The South Shore YMCA adaptive sports program: https://ssymca.org/program/health-fitness/adaptive-programs/?fbclid=IwAR00ia9A3GjnRY5hUQkZSmXT147yLYgesU-A8fuGhVxp5xKEUC1DiYdDwww
Miscellaneous Sites
- The site mentioned where one can apply for a grant when buying a trike is: https://www.curefa.org/aai
- The puzzle link which Jack talked about can be found here: https://www.completingthepuzzle.com
- The link to the thickener which Jack talked about can be found here: https://www.simplythick.com
- The Ataxia Center at Johns Hopkins: https://www.hopkinsmedicine.org/neurology_neurosurgery/centers_clinics/ataxia/
- Dr. Clouse site: https://reclaimingnaturalmovement.com
- An online source for lots of supplements that Peggy mentioned: https://fullscript.com
- White Mountain Puzzles: https://www.whitemountainpuzzles.com
- A Parkinson’s dance site that Cindy uses: https://danceforparkinsons.org/resources/dance-at-home
- information about Mindfulness and Meditationat https://www.mindful.org/
- Puritan’s Pride (several members buy their CoQ10 here): https://www.puritan.com
- The site which Peggy mentioned about resilience: https://www.jnj.com/health-and-wellness/6-resilience-tips-for-living-a-better-life-with-a-chronic-illness
- The CatTongue grips which Donna mentioned: https://cattonguegrips.com/?utm_source=Abilities&utm_medium=email&utm_campaign=Day%2012%3A%20Everything%20is%2025%25%20off%20%28XEb7JM%29&_kx=h2ZyjVUPBzoiukZJ_BQSTiYNf6W9B72pZynD7BO4OLc%3D.RXH7Zk
- The BraunAbility Chair Topper: https://www.braunability.com/us/en/mobility-products/wheelchair-carrier-for-car/chair-topper.html
- Zeen wheelchair: https://gozeen.com/products/the-zeen
- Article about Medicare and PT: https://www.cms.gov/Center/Special-Topic/Jimmo-Center
- National Directory of Home Modification and Repair Resources: https://homemods.org/national-directory/
- Universal Design Institute: https://www.udinstitute.org
- AARP HomeFit Guide: https://www.aarp.org/livable-communities/housing/info-2020/homefit-guide.html?cmp=RDRCT-5342c93c-20200722
Past speakers’ info
- Keja MacEwan (May 2020) from the Spaulding Adaptive Sports Center: KMACEWAN@PARTNERS.ORG
- Andy Gibson (October 2020), andy@newenglandmotorcar.com from New England Motor Car in New Hampshire (https://www.newenglandmotorcar.com/
- Dana Creighton’s book (December 2020), A Family Disease, A Memoir of Multigenerational Ataxia: https://mcfarlandbooks.com/product/a-family-disease/
- Tye Thompson (January 2021) from Northeast Passage: tye.thompson@unh.edu
- Dr. Schmahmann (March 2021): https://www.massgeneral.org/doctors/16489/Jeremy-Schmahmann
- Peggy Laneri (April 2021): mclaneri@icloud.com
- Jon Rodis (May 2021): WSALMGCDJM@aol.com
- Speech therapist Mary Corrado (November 2021): MCORRADO2@partners.org
- Sarah Pilato from NAF (December 2021): sarah@ataxia.org
- Susan Gillam, from CEDAC who discussed The Home Modification Loan Program (February 2022): sgillam@cedac.org
- Nate Berry from Access Sport America (https://goaccess.org) (October 2022): nate@goaccess.org
- Terry Gupta about Therapeutic Yoga (November 2022): terry@yogacaps.org
- Helia Sousa from Social Security office (April 2023): Helia.Sousa@ssa.gov
- Jennifer Keller on Physical Therapy (July 2023): keller@kennedykrieger.org
- George Cavanaugh from Avoca Solutions on Zeen (October 2023): GeorgeC@avocasolutions.com
Ataxia Support 