With something like Ataxia, I say read. There’s a lot out there to look at and try to get an understanding of what is going on and how to cope. Ya, some will be ‘over your head’ but little bits here and there will prove very beneficial. Subscribe to Generations from the NAF. Check out NAF’s resource list, http://www.ataxia.org/resources/generations.aspx. Read stuff about dealing and keeping a positive attitude such as, Lucky Man by Michael J. Fox or The Happiness of Pursuit by Davis Phinney.
Today’s word is furtherance. This noun refers to advancement.
One reference I read mentioned the furtherance of research. This in turn made me think of the NAF (National Ataxia Foundation) and their efforts to fund ataxia research studies that helps bring us closer to ending ataxia. Check out their site: http://www.ataxia.org/research/naf-research-landing.aspx
Today’s word is sodality. This one refers to friendship and companionship. Ahhh, the NAF symbol! What does the symbol for the National Ataxia Foundation (NAF) actually represent? Really, I need some feedback here.
I’ve heard the wheelchair theory and I always bought into that one, However, someone once told me that it was really 2 arms embracing each other in “sodality”. I like that one.
John Mauro is creating a gingerbread Ice Castle at the Auburn Mall to support Ataxia research. Let’s SUPPORT him! The full article can be read here: http://yankeeshopper.net/content/john-mauro-create-gingerbread-ice-castle-auburn-mall
I have Ataxia! And I am not the only one. If you are reading this, this may also be what you are dealing with or someone you know may be dealing with this. So, how do I respond when people look and stare?
Hey everyone welcome to the New England Ataxia Support Groups under the National Ataxia Foundation (NAF) blog. If you have signed on to this group, you have the ability to publish, comment, write, and upload pictures if you wish. You can share ideas, issues, concerns, research, or new findings on here. The general public can see all posts and comment on them.
Let’s start by introducing ourselves. Include a picture if you want, putting that post in the introductions category and then providing contact information under the Contact Info category. Just go to the top right and click “new post” and type away. Don’t forget to choose a category (on the right side). You can always start your own categories too! To invite other members of our support groups to this blog, click the globe on the top left, then ‘visibility’ then ‘users’ then ‘invite new’. Make sure to add all new people as ‘administrator’- Donna