Because the long awaited Boston Support Group meeting at MGH is going to be this Saturday, I thought I’d resurrect this blog.
Today is International Ataxia Awareness Day. Back in June of 1998 I had never heard the word. However, by the following month, the word “Ataxia” had become all too familiar. It was really scary for a mother of a 2-year old and a 5-month old baby. But now I look at my now 19 and 17-year old and realize how much we’ve spread the word. We have reached countless playmates and their parents, classmates and teammates. Not to mention all the groups I’ve participated in over the years. However, there are still lots of people out there that have never heard the word “Ataxia”.
I have found that when I walk around with Denim at my side, I also become an oddity worth staring at. However I have chosen to use this opportunity to spread awareness of my Ataxia as I explain to the onlookers what she does for me.
Today’s word is cynosure which means something that attracts attention. OK, I’ve often heard how we could really use a “Michael J. Fox” of Ataxia. But how could we wish such a disability on anyone? I think we have to just work a little harder to make our own “noise”. Continue reading
OK, even “Susie Sunshine” (as I have been called in the past) has her bad days. Sometimes I just want to yell, “Uncle!” I’m done. I’m beaten. Stop! Continue reading
Today’s quotes, https://sunshineandchaos.wordpress.com/2015/04/05/sunday-quotes-beginnings-2/ , are about BEGINNINGS. The one that rang true for me was: “Every day is a new beginning. Treat it that way. Stay away from what might have been and move on. Don’t let negative words or actions of others affect your smile. Decide that today is going to be a good day.” – Unknown