Today’s word made me laugh. Kerflooey is an adverb meaning to cease functioning, completely and fall apart or fail.
Well isn’t that just the perfect way to describe many of my motor functions? Yes, my legs don’t respond the way I expect anymore. In high school I ran track but now, well, they’ve just gone kerflooey.
The word “aeonian” is an adjective meaning eternal or everlasting.
I am not naïve enough to think that Denim will be around forever. However, for the time being, I can always depend on her to be there when I lose my balance, fall down, try to go up a steep hill, get up from a chair …..
I am going to start a new feature in this blog: “What-if” weekends. Each weekend I will attempt to write about some completely obscure scenario.
Reify means to convert into or regard as a concrete thing: in other words provide proof.
My disability is not obvious if I am not attempting to walk. Therefore, I feel that I need to prove that I need to park in a handicap spot. I know that I am wrong doing this but I always do. It started when an older man angrily accused me of taking my grandmother’s placard when I “stole” HIS parking spot.
This is another word for the state of being tired.
Lack of energy seems to be very common among those with Ataxia. For me anyways, the supplement CoQ10 is vital. I take 1200 mg per day. Unfortunately, this over-the-counter supplement, recommended by most neurologists, is very expensive. I have found this site to be my best option: http://m.puritan.com/co-q-10-055/q-sorb-coq-10-600-mg-030454 ; through them I will buy 5 bottles of 600 mg for $79.98 (Buy 2 Get 3 Free). This will last me just over 2 months.
A bellwether is a person or thing that shows the existence or direction of a trend. It originally referred to a male sheep (also known as a wether) that led the flock, usually bearing a bell.
Ahhh….. My Ataxia definitely gives me predictors of how my Ataxia symptoms will affect me. When I get up from a seated position, I can Immediately tell if I’m going to need to grab hold of one of my strategically placed handrails. Of course I can always depend on my Denim!
This refers to walking or traveling about.
Certainly, this is not easy with Ataxia. However, we all need to find a way to get around. I know that in my case, Denim definitely helps me.
Inveigle means to entice or lure.
If you feel like you’d like to give that a shot, you feel lured, I say go for it!
In my last post I mentioned Denim taking me up a steep hill to see what was on the other side. If you’re curious about what’s “on the other side”, then do what you need to, to “climb that hill”.
There is so much of what I saw on my trip to Bryce Canyon National Park that I would have missed if I had given in to my Ataxia and not answered the “lure of the mountain”.
First of all, I want to apologize for having stayed away for so long. I also want to wish all of you a good year ahead. I really like this sentiment, written by Janet Rebhan: Continue reading
Today is International Ataxia Awareness Day. Back in June of 1998 I had never heard the word. However, by the following month, the word “Ataxia” had become all too familiar. It was really scary for a mother of a 2-year old and a 5-month old baby. But now I look at my now 19 and 17-year old and realize how much we’ve spread the word. We have reached countless playmates and their parents, classmates and teammates. Not to mention all the groups I’ve participated in over the years. However, there are still lots of people out there that have never heard the word “Ataxia”.